ALS Network Honors Brooke Eby as Advocate of the Year, Integrates ALStogether Community
Event summary
- Brooke Eby, diagnosed with ALS in 2022, received the 2026 Dean and Kathleen Rasmussen Advocate of the Year Award for her advocacy and fundraising efforts.
- Eby founded ALStogether, an online Slack community for ALS patients, which was integrated into the ALS Network earlier this year.
- ALStogether has over 1,700 members and serves as a peer-to-peer support network for individuals living with ALS.
- The ALS Network will honor Eby at its Champions for Cures and Care gala on June 20, 2026, in San Francisco.
The big picture
The recognition of Brooke Eby underscores the growing importance of patient-led advocacy in the ALS community. The strategic integration of ALStogether into the ALS Network highlights a trend towards leveraging digital platforms to provide scalable support and resources for individuals living with chronic illnesses. This move could set a precedent for other nonprofits looking to enhance their community engagement and support services.
What we're watching
- Community Growth
- The pace at which ALStogether expands its membership and resources will indicate its long-term impact on ALS patient support.
- Fundraising Momentum
- Whether Brooke Eby's advocacy can sustain the over $1M raised for ALS research and drive further financial support.
- Strategic Integration
- How the integration of ALStogether into the ALS Network will enhance support, connection, and resources for ALS patients.