Muscular Dystrophy Association, Inc.

The Muscular Dystrophy Association (MDA) is the leading voluntary health organization in the United States dedicated to the fight against muscular dystrophy, amyotrophic lateral sclerosis (ALS), and over 300 other neuromuscular conditions. Established in 1950, its core mission is to empower individuals affected by these diseases to live longer, more independent lives by accelerating research, advancing care, and advocating for support and inclusion. The organization's headquarters are located in Chicago, Illinois.

MDA provides a comprehensive range of services and programs, including funding innovative research to develop treatments and cures, and offering access to expert medical care through its extensive Care Center Network, which comprises over 150 clinics nationwide. The association also delivers vital resources, such as its Resource Center, summer camps for children, support groups, equipment assistance, and advocacy initiatives. Through its Quest Media platform, MDA publishes a quarterly magazine, podcast, and blog, fostering a supportive community and providing educational content for patients and caregivers.

Under the leadership of President and CEO Sharon Hesterlee, PhD, who was appointed in November 2025, MDA continues to drive progress in the neuromuscular disease community. Recent activities include marking May as ALS Awareness Month to highlight scientific advancements, personal stories, and legislative advocacy. The organization also engages in significant fundraising efforts, such as the annual MDA Wings Over Wall Street Gala and partnerships with entities like the International Association of Fire Fighters for the "Fill the Boot" campaign and Burn Boot Camp for the "Be Their Muscle" campaign. MDA has also been instrumental in advocating for legislation like the Accelerating Access to Critical Therapies for ALS Act and invests in promising companies developing novel therapies for neuromuscular diseases.